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It is an honour to invite you to the inaugural Fertility Preservation summit jointly hosted by the Paediatric, Adolescent and young Adult Fertility Preservation Taskforce (Royal Children’s Hospital, Royal Women’s Hospital and Melbourne IVF). Fertility preservation in the paediatric and adolescent realm is in its infancy and presents many clinical and ethical challenges. Research by the late Dr Sarah Drew (Royal Children’s Hospital) and colleagues identified a lack of information for families and children about fertility preservation. Since 2011 the Taskforce has worked collaboratively to provide governance in this field. There is recognition that such a program requires professional integration across the adult and paediatric sectors, across all tumour streams, and across disciplines. The conference will bring together major Victorian Comprehensive Cancer Centre (VCCC) partners who are at the forefront of paediatric, adolescent and young adult fertility preservation nationally and globally; as well as consumers in order to highlight complexities in the field (clinical, psychological, scientific).

We thank the VCCC for their support of this conference. We are very grateful to the Victorian Cancer Agency for providing us with grant funding for our academic program which will be a focus of discussion today and to our research students and supervisors who have facilitated this stimulating and thought-provoking work. Clinicians, families, scientists and researchers form the backbone of our program. Many have provided input into the clinical pathways for which we are very grateful. We hope to continue this dialogue today in a true spirit of exchange.

I wish to particularly thank Mr Matthew Furphy, Mrs Shari Skidmore and Mrs Anne Kay for sharing their perspectives today; as such feedback can assist in overcoming deficiencies in clinical care. Furthermore it can assist continuation of the legacy of the work that Dr Drew started in order to provide transparent and equitable care for our patients and families. We sincerely thank Dr Matthew Kemertzis and Ms Franca Agresta for their tireless efforts in this field and for organising this event.

Dr Yasmin Jayasinghe FRANZCOG, PhD

Senior Lecturer Department of Obstetrics & Gynaecology, University of Melbourne
Consultant Gynaecologist Royal Children's Hospital, Royal Women's Hospital
Paediatric and Adolescent Fertility Preservation Taskforce

Associate Professor Kate Stern MBBS, MRCOG, FRANZCOG, CREI

Head of Fertility Preservation, Melbourne IVF and The Royal Women’s Hospital
Head of Clinical Research, Melbourne IVF
Gynaecologist Reproductive Biology Unit and Endocrine and Metabolic Service, The Royal Women's Hospital


Program Agenda

Session 1 – (Chair: Franca Agresta)

9:00 – 9:10
Opening Remarks
Prof Jim Bishop (VCCC)
9:10 – 9:30
How big is the problem – are children at risk?
Dr Peter Downie
9:30 – 9:50
How big is the problem – Haematological malignancies
Dr Matthew Ku
9:50 – 10:10
How big is the problem – Solid tumours 
A/Prof Orla McNally
10:10 – 10:30
What’s available - Fertility Preservation Options
A/Prof Kate Stern
10:30 – 10:50
Effects of pelvic radiation and total body irradiation on uterine function
Dr Genia Rozen
10:50 – 11:00
Adult fertility preservation – A patients' perspective
Matthew Furphy and Shari Skidmore
11:00 – 11:15
Morning Tea Break

Session 2 – (Chair: Dr Matthew Kemertzis)

11:15 – 11:45
Fertility Preservation at The Royal Children’s Hospital: Past, Present & Future
Dr Yasmin Jayasinghe
11:45 – 12:05
Fertility Preservation in boys – Options & challenges
Prof Margaret Zacharin
12:05 – 12:15
Paediatric Fertility Preservation – A parent’s perspective
Anne Kay
12:15 – 12:30
What happens to my tissue – Ovarian tissue
Dr Debra Gook
12:30 – 12:45
What happens to my tissue – Testicular tissue
Harold Bourne
12:45 – 1:00
What happens to my tissue – Sperm
A/Prof Gary Clarke
1:00 – 2:00
Lunch Break

Session 3 – (Chair: Dr Yasmin Jayasinghe)

2:00 – 2:45
Dr Sarah Drew Plenary Lecture Developing a clinical ethics framework for fertility preservation in children and adolescents
Dr Lynn Gillam
2:45 – 3:05
Equity of access
Dr Joseph Sgroi
3:05 – 3:25
Supportive Care Needs of Young Women & Men Seeking Fertility Preservation
Prof Jane Fisher
3:25 – 3:40
Afternoon Tea Break

Session 4 – (Chair: Dr Lynn Gillam)

3:40 – 4:00
Regret, satisfaction and acceptance around fertility preservation decisions in parents and cancer survivors
Dr Michelle Peate
4:00 – 4:20
Sex, school, friends – Social issues for young people
Kate Thomson
4:20 – 4:50
Panel discussion – Is fertility preservation right for me?
Dr Paddy Moore
4:50 – 5:00
Closing remarks
Prof Paul Monagle

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